Seeing a Doctor when You Suspect You May Have Acromegaly
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Seeing a Doctor when You Suspect You May Have Acromegaly

Acromegaly is a rare hormonal disorder which occurs when the pituitary gland releases too much growth hormone

Acromegaly is a condition where the pituitary gland releases too much growth hormone, and the effects on the sufferers of this disease can be fatal.

The process for being tested for acromegaly begins with a visit to your family doctor. If your doctor feels there is need to test further then you will be sent to an endocrinologist. The doctor’s visit is short and you must prepared to get everything in this initial visit.

  • Ask in advance of the appointment if you will need to prepare for blood tests etc. You may need to fast.
  • Write your symptoms down so you do not forget. Your doctor must know everything to correctly diagnose your condition. You will mark down everything you can think of such as headaches, eye problems, dental problems and even symptoms you do not think could possibly be related.
  • Write down personal information such as irregularities with your female cycle,
  • List all the medication you are taking and their dosages.
  • Bring some old photos of yourself so that your doctor can see the visible changes in your appearance over the last 10 years or more.
  • Bring a family member or friend to fill in the gaps. Having someone with you is helpful as the individual may remember something the doctor said that you didn’t.

List the questions you want to ask in order of importance such as:

  • Is acromegaly the only disease that I may have?
  • What tests must I have?
  • What is the treatment for acromegaly?
  • How long does it take for the treatment to start working?
  • Will I look like my old self after treatment is completed?
  • How serious is my condition and what are the complications?
  • Will I pass this condition onto my children?
  • Will insurance cover the cost of medication, testing, and hospital stays (for Americans)
  • Is there alternatives to the treatment you are proscribing?
  • Do you have any information or Internet sites I can check into to learn more about the condition?

Be prepared for questions your doctor will need to ask such as;

  • When did you first notice your symptoms?
  • Do you notice a change in your appearance?
  • Do you have headaches, vision problems, joint pain, excessive sweating, body odor, or trouble sleeping?
  • Have you noticed if anything you do makes your symptoms better or worse?
  • Do you have old pictures of yourself and have you noticed if your features have changed over time.
  • Have you had colon cancer screening?

Remember getting to the bottom of your conditon may help save your life.


Mayo clinic

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Comments (6)

Excellent tips, Carol.

thank you so much deep blue

Never heard of this. Thanks.

thanks for reading Sandy

thank you deep blue

You have such valuable health facts here for education and use for application too.