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A Multiple Sclerosis Caregivers View - What is Spasticity?

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Among the problems from multiple sclerosis, come spasticity, where muscles stiffen and do not always perform the way the brain would expect them to operate. The problem with multiple sclerosis, is that symptoms are different for every person and keeping track of the good and bad if very important to know what symptoms that are occurring are related to the disease, or something else.

One of the words that has been used several times in both conversation and literature we have been supplied with through our chosen drug; Rebif, has been spasticity. Trying to absorb the diagnosis of Multiple Sclerosis has not been an easy one for my husband. You see, his father had the illness and died at the age of fifty-three. His father's illness was progressive and nothing like the illness that he has been dealt. The biggest problem are his memories of his father who degenerated rapidly and became a vegetable. This burden was especially tough on his dear mother, who worked a full-time job and came home to take care of a husband who needed more attention than a newborn baby. My husband and his younger brother took turns doing night duty when his mother was lucky enough to get a job at a nearby hospital working the night shift. 

Now we face our future as senior citizens, both retired on a fixed income. We know that his prognosis is good, he is accepting his drug as well as can be expected and we will be applying for assistance with paying for his MS drug, from the manufacturers of Rebif. Until about a week ago, the word spasticity was just a word that appeared in his Rebif literature. Recently, I noticed that during his sleep, he jumps sufficiently to startle me. He is a sound sleeper and I burn the midnight oil usually writing. So when I finally go to bed I will put the television on with the sleep timer and drift off while he is sound asleep. 

Spascticity as it appears on MedlinePlus, means stiff or rigid muscles, increased muscle tone or tightness of muscles. At one point in time, nearly everyone has a muscle cramp or muscle pull, but with Multiple Sclerosis.

Symptoms of spasticity include: 

  • Abnormal posture
  • Carrying the shouler, arm, wrist, and finger at an abnormal angle because of muscle tightness
  • Exaggerated deep tendon reflexes (the knee-jerk or other reflexes)
  • Repetitive jerky motions (clonus), especially when you are touched or moved
  • Scissoring (crossing of the legs as the tips of scissors would close)
  • Spasticity can also affect speech
  • Severe long-term spasticity can cause contracture which can leave joints bent in a permanent position

We will be seeing our neurologist next week and are looking forward to asking him more questions. One of the questions that our nurse pointed out to us regarded his last MRI, of his spinal column. I'm sure he told us at the time, but we were still in shock and do not remember if there were lesions on his spine or just on his brain. 

Now that I have the ability to write his progress here on Factoidz, and share with others who have the illness or have a friend or family member with Multiple Sclerosis, I am committed to sharing this information; good or bad. Thanks for the encouragement we get from other writers and readers of these posts.

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Comments (7)

I admire your willingness to keep abreast of all that transpires so you can better care for your husband and share with others . You articles help many with questions they don't even ask you. thank you. Blessings

Roberta, thanks so much for your kind and considerate comment! xoxoxo

Returning with a well deserved vote .

Learned a lot by this informative post. Thanks for sharing!

You guys are amazing. Just sayin...

I'm sure it's very scary for your husband to realize he has the same debilitating disease as his father. That's a nightmare but thank goodness he has you to help him through this, Diane. XOXOXO

It is an excellent practice to keep a log of symptoms. It is so easy to forget things once we get to the neuro's office. The drugs for spasticity are very good. I have the problem too, but have not had to use medication to treat it. When it flares up to the point that I need medication, Baclophen works well for me. I have noticed that when I am able to increase my activity, even if it is just walking a little more, my spasticity eases up. A caregiver's viewpoint is much appreciated. I am sure your husband is very appreciative that you are so willing to learn all that you can in order to help him.

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